Works Cited

1. Centers for Disease Control and Prevention. Developmental Disabilities. Available at https://www.cdc.gov/ncbddd/developmentaldisabilities/index.html. Last accessed May 22, 2019.

2. American Association on Intellectual and Developmental Disabilities. Definition of Intellectual Disability. Available at https://aaidd.org/intellectual-disability/definition. Last accessed May 22, 2019.

3. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th ed. Washington, DC: American Psychiatric Association; 2013.

4. Fredricks DW, Williams LW. New definition of mental retardation for the American Association of Mental Retardation.Image J Nurs Scholarship. 1998;30(1):53-56.

5. Prevatt B. Gynecologic care for women with mental retardation. J Obstet Gynecol Neonatal Nurs. 1998;27(3):251-256.

6. Ouellette-Kuntz H, Garcin N, Lewis S, Minnes P, Martin C, Holden J. Addressing health disparities through promoting equity for individuals with intellectual disability. Can J Public Health. 2005;96(suppl 2):S8-S22.

7. Kerr M. Improving the general health of people with learning disabilities. Adv Psychiatr Treatment. 2004;10:200-206.

8. The Center for an Accessible Society. U.S. Healthcare Fails People with Mental Retardation, Says Report. Available athttp://www.accessiblesociety.org/e_letters/eletter021902.htm. Last accessed May 22, 2019.

9. U.S. Department of Health and Human Services, Office of the Surgeon General. Closing the Gap: A National Blueprint to Improve the Health of Persons with Mental Retardation. Rockville, MD: U.S. Dept. of Health and Human Services, Public Health Service, Office of the Surgeon General; 2002.

10. U.S. Department of Health and Human Services, Administration for Community Living. The President's Committee for People with Intellectual Disabilities. Available at https://acl.gov/programs/empowering-advocacy/presidents-committee-people. Last accessed May 22, 2019.

11. Krahn GL, Drum CE. Translating policy principles into practice to improve health care access for adults with intellectual disabilities: a research review of the past decade. Ment Retard Dev Disabil Rev. 2007;13(2):160-168.

12. Ervin DA, Merrick J. Intellectual and developmental disability: healthcare financing. Front Public Health. 2014;2:160.

13. Walsh KK, Hammerman S, Josephson F, Krupka P. Caring for people with developmental disabilities: survey of nurses about their education and experience. Ment Retard. 2000;38(1):33-41.

14. Gardner MR. Preparing nurses to care for people with developmental disabilities: perspectives on integrating developmental disabilities concepts and experiences into nursing education. Nurs Clin North Am. 2012;47(4):517-527.

15. Grossman SA, Richards CF, Anglin D, Hutson HR. Caring for the patient with mental retardation in the emergency room.Ann Emerg Med. 2000;35(1):69-76.

16. Hewitt A, Larson S. The direct support workforce in community supports to individuals with developmental disabilities: issues, implications, and promising practices. Ment Retard Dev Disabil Rev. 2007;13(2):178-187.

17. Bosch JJ. Health maintenance throughout the life span for individuals with Down syndrome. J Am Acad Nurse Pract. 2003;15(1):5-17.

18. Kozma C, Mason S. Survey of nursing and medical profile prior to deinstitutionalization of a population with profound mental retardation. Clin Nurs Res. 2003;12(1):8-22.

19. Kaiser Commission on Medicaid and the Underinsured. People with Disabilities and Medicaid Managed Care: Key Issues to Consider. Washington, DC: Kaiser Family Foundation; 2012.

20. Pradhan A, Slade GD, Spencer AJ. Access to dental care among adults with physical and intellectual disabilities: residence factors. Aust Dent J. 2009;54(3):204-211.

21. Braddock D. Washington rises: public financial support for intellectual disability in the United States, 1955–2004. Ment Retard Dev Disabil Res Rev. 2007;13(2):169-177.

22. U.S. Department of Health and Human Services, Administration for Community Living. Administration on Intellectual and Developmental Disabilities. Available at https://acl.gov/about-acl/administration-disabilities. Last accessed May 22, 2019.

23. Office on Women's Health. Women and the ADA. Available at https://www.womenshealth.gov/blog/women-ada. Last accessed May 22, 2019.

24. National Down Syndrome Society. Health care guidelines for individuals with Down syndrome: 1999 revision. Down Syndrome Q. 1999;4(3):1-16.

25. Pueschel SM. Clinical aspects of Down syndrome from infancy to adulthood. Am J Med Genet Suppl. 1990;7:52-56.

26. National Down Syndrome Society. Health Care. Available at https://www.ndss.org/about-down-syndrome/down-syndrome- through-the-lifespan/health-care/. Last accessed May 22, 2019.

27. Stout KK, Daniels CJ, Aboulhosn JA, et al. 2018 AHA/ACC guideline for the management of adults with congenital heart disease: executive summary: a report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019;73(12):1494-1563.

28. Smith DS. Health care management of adults with Down syndrome. Am Fam Physician. 2001;64:1031-1040.

29. Prater CD, Zylstra RG. Medical care of adults with mental retardation. Am Fam Physician. 2006;73:2175-2183.

30. Zwakhalen S, van Dongen K, Hamers JP, Abu-Saad HH. Pain assessment in intellectually disabled people: non-verbal indicators.J Adv Nurs. 2004;45(3):236-245.

31. Bernstein BE, Glaze DG. Rett Syndrome. Available at https://emedicine.medscape.com/article/916377-overview. Last accessed May 22, 2019.

32. Crawford AH. Orthopedic Manifestations of Neurofibromatosis Type 1. Available at https://emedicine.medscape.com/article/1260124-overview. Last accessed May 22, 2019.

33. Scheimann A. Prader-Willi Syndrome. Available at https://emedicine.medscape.com/article/947954-overview. Last accessed May 22, 2019.

34. Izquierdo NJ, Townsend W. Opthalmologic Manifestations of Down Syndrome. Available at https://emedicine.medscape.com/article/1200824-overview. Last accessed May 22, 2019.

35. Schwartz RA, Jozwiak S. Genetics of Tuberous Sclerosis. Available at https://emedicine.medscape.com/article/951002-overview. Last accessed May 22, 2019.

36. Chaney RH, Eyman RK. Patterns in mortality over 60 years among persons with mental retardation in a residential facility.Ment Retard. 2000;38(3):289-293.

37. Espie CA, Watkins J, Curtice L, et al. Psychopathology in people with epilepsy and intellectual disability: an investigation of explanatory variables. J Neurol Neurosurg Psychiatry. 2003;74(11):1485-1492.

38. Tyler CV Jr, Noritz G. Healthcare issues in aging adults with intellectual and other developmental disabilities. Clin Geriatr. 2009;17(8).

39. Kelly K, Stephen LJ, Brodie MJ. Pharmacological outcomes in people with mental retardation and epilepsy. Epilepsy Behav. 2004;5(1):67-71.

40. LexiComp Online. Available at http://online.lexi.com. Last accessed May 22, 2019.

41. U.S. Food and Drug Administration. Safety: Antiepileptic Drugs. Available athttps://wayback.archive-it.org/7993/ 20170112165945/http://www.fda.gov/Safety/MedWatch/SafetyInformation/SafetyAlertsforHumanMedicalProducts/ ucm074939.htm. Last accessed May 22, 2019.

42. Kupferman JC, Druschel CM, Kupchik GS. Increased prevalence of renal and urinary tract anomalies in children with Down syndrome. Pediatrics. 2009;124(4):e615-e621.

43. Joseph DB, Uehling DT, Gilbert EL, Laxova R. Genitourinary abnormalities associated with the Smith-Lemli-Opitz syndrome.J Urol. 1987;137(4):719-721.

44. Mercer ES, Broecker B, Smith EA, Kirsch AJ, Scherz HC, A Massad C. Urological manifestations of Down syndrome.J Urol. 2004;171(3):1250-1253.

45. Hyams G, McCoull K, Smith PS, Tyrer SP. Behavioral continence training in mental handicap: a 10-year follow-up study.J Intellect Disabil Res. 1992;36(pt 6):551-558.

46. Clark J. Providing intimate continence care for people with learning disabilities. Nurs Times. 2009;105(6):26-28.

47. Jasien J, Daimon CM, Maudsley S, Shapiro BK, Martin B. Aging and bone health in individuals with developmental disabilities.Int J Endocrinol. 2012;469235.

48. Heller T, Ying GG, Rimmer JH, Marks BA. Determinants of exercise in adults with cerebral palsy. Public Health Nurs. 2002;19(3):223-231.

49. Marks BA, Heller T. Bridging the equity gap: health promotion for adults with intellectual and developmental disabilities.Nurs Clin North Am. 2003;38(2):205-228.

50. Rimmer JH, Braddock D. Health promotion for people with physical, cognitive and sensory disabilities: an emerging national priority. Am J Health Promot. 2002;16(4):220-224.

51. Bazzano AT, Zeldin AS, Diab IR, et al. The Healthy Lifestyle Change Program: a pilot of a community-based health promotion intervention for adults with developmental disabilities. Am J Prev Med. 2009;37(6 suppl 1):S201-S208.

52. Ohyama Y, Utsugi T, Uchiyama T, Hanaoka T, Tomono S, Kurabayashi M. Prevalence of diabetes in adult patients with Down's syndrome living in a residential home. Diabetes Care. 2000;23(5):705-706.

53. Draheim CC, Williams DP, McCubbin JA. Physical activity, dietary intake, and the insulin resistance syndrome in nondiabetic adults with mental retardation. Am J Ment Retard. 2002;107(5):361-375.

54. Rimmer JH, Braddock D, Fujiura G. Cardiovascular risk factor levels in adults with mental retardation. Am J Ment Retard. 1994;98(4):510-518.

55. Wallace RA, Schluter P. Audit of cardiovascular disease risk factors among supported adults with intellectual disability attending an ageing clinic. J Intellect Dev Disabil. 2008;33(1):48-58.

56. Draheim CC, McCubbin JA, Williams DP. Differences in cardiovascular disease risk between nondiabetic adults with mental retardation with and without Down syndrome. Am J Ment Retard. 2002;107(3):201-211.

57. Jaffe JS, Timell AM. Prevalence of low bone density in institutionalized men with developmental disabilities. J Clin Densitom. 2003;6(2):143-147.

58. Jaffe JS, Timell AM, Gulanski BI. Prevalence of low bone density in women with developmental disabilities. J Clin Densitom. 2001;4(1):25-29.

59. Leslie WD, Pahlavan PS, Roe EB, Dittberner K. Bone density and fragility fractures in patients with developmental disabilities. Osteoporos Int. 2009;20(3):379-383.

60. Center J, Beange H, McElduff A. People with mental retardation have an increased prevalence of osteoporosis: a population study. Am J Ment Retard. 1998;103(1):19-28.

61. Cranney A, Horsley T, O'Donnell S, et al. Effectiveness and safety of vitamin D in relation to bone health. Evid Rep TechnolAssess. 2007;(158):1-235.

62. National Institutes of Health Office of Dietary Supplements. Dietary Supplement Fact Sheet: Vitamin D. Available at https://ods.od.nih.gov/factsheets/vitaminD-HealthProfessional/. Last accessed May 22, 2019.

63. Schrager S. Osteoporosis in women with disabilities. J Womens Health (Larchmt). 2004;13(4):431-437.

64. Cowley A, Holt G, Bouras N, Sturmey P, Newton JT, Costello H. Descriptive psychopathology in people with mental retardation.J Nerv Ment Dis. 2004;192(3):232-237.

65. Bhaumik S, Tyrer FC, McGrother C, Ganghadaran SK. Psychiatric service use and psychiatric disorders in adults with intellectual disability. J Intellect Disabil Res. 2008;52(11):986-995.

66. National Association for the Dually Diagnosed. Information on Dual Diagnosis. Available at http://thenadd.org/resources/information-on-dual-diagnosis-2. Last accessed May 22, 2019.

67. Brown JF, Brown MZ, Dibiasio P. Treating individuals with intellectual disabilities and challenging behaviors with adapted dialectical behavior therapy. J Ment Health Res Intellect Disabil. 2013;6(4):280-303.

68. Kerker BD, Owens PL, Zigler E, Horwitz SM. Mental health disorders among individuals with mental retardation: challenges to accurate prevalence estimates. Public Health Rep. 2004;119(4):409-417.

69. Ailey SH. Beyond the disability: recognizing mental health issues among persons with intellectual and developmental disabilities. Nurs Clin North Am. 2003;38(2):313-329.

70. Hamer BA. Assessing mental status in persons with mental retardation. J Psychosoc Nurs. 1998;36(5):27-31.

71. Myrbakk E, von Tetzchner S. Psychiatric disorders and behavior problems in people with intellectual disability. Res Dev Disabil. 2008;29(4):316-332.

72. McBrien JA. Assessment and diagnosis of depression in people with intellectual disability. J Intellect Disabil Res. 2003;47(pt 1):1-13.

73. American Psychiatric Association. Practice Guideline for the Psychiatric Evaluation of Adults. 3rd ed. Washington, DC: American Psychiatric Association; 2016.

74. Bush A, Beail N. Risk factors for dementia in people with Down syndrome: issues in assessment and diagnosis. Am J Ment Retard. 2004;109(2):83-97.

75. Alvarez N. Alzheimer Disease in Down Syndrome. Available at https://emedicine.medscape.com/article/1136117-overview. Last accessed May 22, 2019.

76. Halverson JL, Bhalla RN, Moraille-Bhalla P, Andrew LB. Depression. Available at https://emedicine.medscape.com/article/ 286759-overview. Last accessed May 22, 2019.

77. Meins W. Symptoms of major depression in mentally retarded adults. J Intellect Disabil Res. 2008;39(1):41-45.

78. Esbensen AJ, Seltzer MM, Greenberg JS, Benson BA. Psychometric evaluation of a self-report measure of depression for individuals with mental retardation. Am J Ment Retard. 2005;110(6):469-481.

79. Hobden KL, LeRoy BW. Assessing Mental Health Concerns in Adults with Intellectual Disabilities: A Guide to Existing Measures. Developmental Disabilities Institute. Available at http://thenadd.org/modal/bulletins/v11n3a3~.htm. Last accessed May 22, 2019.

80. Nottestad JA, Linaker OM. Psychotropic drug use among people with intellectual disability before and after deinstitutionalization.J Intellect Disabil Res. 2003;47(pt 6):464-471.

81. Matson JL, Bamburg JW, Mayville EA, et al. Psychopharmacology and mental retardation: a 10-year review (1990–1999).Res Dev Disabil. 2000;21(4):263-296.

82. Davis E, Barnhill LJ, Saeed SA. Treatment models for treating patients with combined mental illness and developmental disability. Psychiatr Q. 2008;79(3):205-223.

83. American Psychiatric Nurses Association. FAQs about Advanced Practice Psychiatric Nurses. Available at https://www.apna.org/i4a/pages/index.cfm?pageid=3866. Last accessed May 22, 2019.

84. National Institute of Mental Health. Mental Health Medications. Available at https://www.nimh.nih.gov/health/topics/mental-health-medications/index.shtml. Last accessed May 22, 2019.

85. Tyrer P, Oliver-Africano PC, Ahmed Z, et al. Risperidone, haloperidol, and placebo in the treatment of aggressive challenging behavior in patients with intellectual disability: a randomized controlled trial. Lancet. 2008;371(9606):57-63.

86. Cutler LA. Mental health services for persons with mental retardation: role of the advanced practice psychiatric nurse.Issues Ment Health Nurs. 2001;22(6):607-620.

87. National Institute of Mental Health. Psychotherapies. Available at https://www.nimh.nih.gov/health/topics/psychotherapies/ index.shtml. Last accessed May 22, 2019.

88. Romana MS. Cognitive-behavioral therapy: treating individuals with dual diagnosis. J Psychosoc Nurs Ment Health Serv. 2003;41(12):30-35.

89. Nehring WM. History of the roles of nurses caring for persons with mental retardation. Nurs Clin North Am. 2003;38(2):351-372.

90. Marks BA, Heller T. Bridging the equity gap: health promotion for adults with intellectual and developmental disabilities.Nurs Clin North Am. 2003;38(2):205-228.

91. Fisher K. Nursing care of special populations: issues in caring for elderly people with mental retardation. Nurs Forum. 2004;39(1):28-31.

92. Stein GL. Providing palliative care to people with intellectual disabilities: services, staff knowledge, and challenges. J Palliat Med. 2008;11(9):1241-1248.

93. Tuffrey-Wijne I, Whelton R, Curfs L, Hollins S. Palliative care provision for people with intellectual disabilities: a questionnaire survey of specialist palliative care professionals. Palliat Med. 2008;22(3):281-290.

94. Nehring WM, American Nurses Association, American Association on Mental Retardation Nursing Division. Intellectual and Developmental Disabilities Nursing: Scope and Standards of Practice. 2nd ed. Silver Spring, MD: American Nurses Association; 2012.

95. Scheiman M. Understanding and Managing Vision Deficits: A Guide for Occupational Therapists. 3rd ed. Thorofare, NJ: SLACK Inc.; 2011.

96. Wilson W, Taubert KA, Gewitz M, et al. Prevention of infective endocarditis: guidelines from the American Heart Association: a guideline from the American Heart Association Rheumatic Fever, Endocarditis, and Kawasaki Disease Committee, Council on Cardiovascular Disease in the Young, and the Council on Clinical Cardiology, Council on Cardiovascular Surgery and Anesthesia, and the Quality of Care and Outcomes Research Interdisciplinary Working Group. Circulation. 2007;116:1736-1754.

97. Mondal K, Maheshwari A, Aneja S, Seth A. A case of Down syndrome with a posterior urethral valve. Indian J Nephrol. 2012;22(5):403-405.

98. Badiu C, Verzea S, Picu M, Pencea C. Autoimmunity puzzle in Down syndrome. Downs Syndr Res Pract. 2010;12(2):98-102.

99. Association for Behavioral and Cognitive Therapies. Cognitive Remediation for Psychiatric Disorders. Available at http:// www.abct.org/Information/?m=mInformation&fa=fs_COGNITIVE_REMEDIATION. Last accessed May 22, 2019.

100. White SW, Ollendick T, Scahill L, Oswald D, Albano AM. Preliminary efficacy of a cognitive-behavioral treatment program for anxious youth with autism spectrum disorders. J Autism Dev Disord. 2009;39(12):1652-1662.

101. Brosnan J, Healy O. A review of behavioral interventions for the treatment of aggression in individuals with developmental disabilities. Res Dev Disabil. 2011;32:437-446.

Evidence-Based Practice Recommendations Citations

1. Sullivan WF, Diepstra H, Heng J, et al. Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines. Can Fam Physician. 2018;64(4):254-279. Available at https://www.cfp.ca/content/64/4/254. Last accessed June 6, 2019.



Privacy Policy
Copyright © 2019 CE Resource, P.O. Box 997571, Sacramento, CA 95899-7571
Mention of commercial products does not indicate endorsement.